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Tittel Coping with transitions in life: a four-year longitudinal narrative study of single younger people with dementia
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Noter Background: People with younger onset dementia (YOD <65 years) experience a great transformation of existential life. Living alone, they lack the support of a partner, and have a higher risk of moving into a residential care facility. Aim: To explore how people living alone with YOD experience and cope with transitions during the progression of dementia.Method: A longitudinal qualitative approach was used. From 2014 to 2018, we interviewed 10 persons with YOD every 6 months for up to four years. Findings: Two significant main transitions and themes were registered under the perspective; experiencing and coping with (1) receiving the diagnosis of dementia and (2) moving to a residential care facility, which covers two subthemes: moving to a supported living accommodation and moving to a nursing home. To get the diagnosis was initially experienced as a dramatic disaster, while moving to residential care were mainly experienced as positive. With efficient cognitive and emotion-focused coping strategies, the participants adapted and experienced a mostly good life for a long time. Conclusion: People with dementia can describe their lived experiences for a long time after receiving the diagnosis. They adapt and preserve a feeling of a rather good life by the efficient use of various coping strategies. High-quality public support is of significant importance to assist them in sustaining quality of life and vitality.
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*000 ap
*00138781
*100 $aJohannessen, Aud
*245 $aCoping with transitions in life: a four-year longitudinal narrative study of single younger people with dementia$cAud Johannessen, Knut Engedal, Per Kristian Haugen, Marcia DN Mourado, Kirsten Thorsen
*260 $c2019
*300 $adoi: 10.2147/JMDH.S208424
*440 $aJournal of Multidisciplinary Healthcare $v2019, 12
*505 $aBackground: People with younger onset dementia (YOD <65 years) experience a great transformation of existential life. Living alone, they lack the support of a partner, and have a higher risk of moving into a residential care facility. Aim: To explore how people living alone with YOD experience and cope with transitions during the progression of dementia.Method: A longitudinal qualitative approach was used. From 2014 to 2018, we interviewed 10 persons with YOD every 6 months for up to four years. Findings: Two significant main transitions and themes were registered under the perspective; experiencing and coping with (1) receiving the diagnosis of dementia and (2) moving to a residential care facility, which covers two subthemes: moving to a supported living accommodation and moving to a nursing home. To get the diagnosis was initially experienced as a dramatic disaster, while moving to residential care were mainly experienced as positive. With efficient cognitive and emotion-focused coping strategies, the participants adapted and experienced a mostly good life for a long time. Conclusion: People with dementia can describe their lived experiences for a long time after receiving the diagnosis. They adapt and preserve a feeling of a rather good life by the efficient use of various coping strategies. High-quality public support is of significant importance to assist them in sustaining quality of life and vitality.
*650 $aTidlig stadium
*650 $aYngre personer med demens
*650 $aLongitudinal Studies
*650 $aMestring
*650 $aKvalitativ forskning
*650 $aHelse
*700 $aHaugen, Per Kristian
*700 $aThorsen, Kirsten
*700 $aEngedal, Knut
*700 $aMourado, Marcia
*856 $uhttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC6605042/
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