Nasjonalt senter for aldring og helse : Quality of Life, Care Resource Use, and Costs of Dementia in 8 European Countries in a Cross-Sectional Cohort of the Actifcare Study.

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Quality of Life, Care Resource Use, and Costs of Dementia in 8 European Countries in a Cross-Sectional Cohort of the Actifcare Study.

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Forfatter	Handels, Ron
Tittel	Quality of Life, Care Resource Use, and Costs of Dementia in 8 European Countries in a Cross-Sectional Cohort of the Actifcare Study.
Medansvarlig	Selbæk, Geir Michelet, Mona Røsvik, Janne
Språk	Språk:
Emne	Demens Livskvalitet Ressurser Økonomi Tverrfaglig studie Actifcare
Serie	Journal of Alzheimer's Disease
Serienummer	2018 Oct 25
År	2018
Noter	Background: With 10.5 million people with dementia in Europe and $301 billion associated costs, governments face challenges organizing access to care. Methods: Cross-sectional data from 451 persons with dementia and their informal caregivers of the Actifcare cohort study were obtained. Formal and informal care use was multiplied by country specific unit prices of services. Needs were measured using the CANE and health-related quality of life (HRQOL) of the person with dementia (both self- and proxy-rated) and informal caregiver's quality of life using EQ-5D-5L, ICECAP-O, DEMQOL-U, and CarerQol utility scores. The association between costs and country, European region, and unmet needs was assessed using multi-level linear regression. Results: Self-rated EQ-5D-5L utility score was higher than proxy-rated (0.84 and 0.71, respectively). Informal caregivers' utility score was 0.84. Across eight countries annual mean costs of formal and informal care were approximately € 17,000. Unmet needs were not associated with annual costs of care, nor with proxy-rated HRQOL, but were associated with self-rated HRQOL. Conclusion: We found varying relationships between unmet needs and quality of life, and no association between unmet needs and care costs, although the results were sensitive to various factors. Future research should further investigate the relation between unmet needs, quality of life and costs to generate a better understanding of the effects of (un)timely access to care.
Tilgjengelige	1/1
L�nere p� venteliste	0 (0)

*000      ap
*00138473
*100  $aHandels, Ron
*245  $aQuality of Life, Care Resource Use, and Costs of Dementia in 8 European Countries in a Cross-Sectional Cohort of the Actifcare Study.$cRon L.H. Handels, Anders Sköldunger, Anja Biebere, Rhiannon Tudor Edwardsk, Manuel Gonc¸alves-Pereirac, Louise Hopperd, Kate Irvingd, Hannah Jelleyi, Liselot Kerpershoeka, Maria J. Marquesc, Gabriele Meyere, Mona Michelet, Elisa Portolanij, Janne Røsvikf, Geir Selbaekf, Astrid Stephane, Marjolein de Vugta, Claire Wolfsa, Bob Woodsi, Orazio Zanettij, Frans Verheya, Anders Wimob,l and Actifcare consortium
*260  $c2018
*300  $aDOI 10.3233/JAD-180275
*440  $aJournal of Alzheimer's Disease$v2018 Oct 25
*505  $aBackground: With 10.5 million people with dementia in Europe and $301 billion associated costs, governments face challenges organizing access to care. Methods: Cross-sectional data from 451 persons with dementia and their informal caregivers of the Actifcare cohort study were obtained. Formal and informal care use was multiplied by country specific unit prices of services. Needs were measured using the CANE and health-related quality of life (HRQOL) of the person with dementia (both self- and proxy-rated) and informal caregiver's quality of life using EQ-5D-5L, ICECAP-O, DEMQOL-U, and CarerQol utility scores. The association between costs and country, European region, and unmet needs was assessed using multi-level linear regression. Results: Self-rated EQ-5D-5L utility score was higher than proxy-rated (0.84 and 0.71, respectively). Informal caregivers' utility score was 0.84. Across eight countries annual mean costs of formal and informal care were approximately € 17,000. Unmet needs were not associated with annual costs of care, nor with proxy-rated HRQOL, but were associated with self-rated HRQOL. Conclusion: We found varying relationships between unmet needs and quality of life, and no association between unmet needs and care costs, although the results were sensitive to various factors. Future research should further investigate the relation between unmet needs, quality of life and costs to generate a better understanding of the effects of (un)timely access to care.
*650  $aDemens
*650  $aLivskvalitet
*650  $aRessurser
*650  $aØkonomi
*650  $aTverrfaglig studie
*650  $aActifcare
*700  $aSelbæk, Geir
*700  $aMichelet, Mona
*700  $aRøsvik, Janne
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Ex1	Tilgjengelig		Nasjonalt senter for aldring og helse